The quality of life of UTI patients and what needs to be done to improve this quality?
As part of the campaign to help children with heart disease, we continue a series of publications on the topics: What is congenital heart disease (CHD)? What variants of the Air Force exist or the Air Force classification? What is endovascular treatment (surgery)? And also stories of children with heart defects who will be helped within the action. Today, we will tell you about the quality of life of patients with UTI and what needs to be done to improve this quality? At present, the prospects for children with congenital heart disease in terms of future life and well-being due to the advent of high-tech treatment have become much better than a few decades ago. Today, most patients who receive timely care and treatment easily reach sexual maturity and lead an active lifestyle. Some of them after treatment need only minimal therapy and an annual visit to a cardiologist for dynamic monitoring of the heart. A small number of children with complex heart defects subsequently require specialized treatment, rehabilitation and supervision by pediatric cardiologists, which allows them to stay healthy for a long time and maintain a good quality of life. Observation. For the child and parents after the operation it is necessary to be under the supervision of a pediatric cardiologist or cardiac surgeon. This observation usually consists of: • Regular consultations, examinations and examinations by a pediatric cardiologist • Follow-up visits to the district pediatrician or family doctor • Continuous use of prescribed medications Children with severe congenital heart disease are at constant risk of developing and developing bacterial endocarditis, one of the most complex and serious infections of the cardiovascular system. Parents of the child must consult with their cardiologist and, if necessary, carry out a preventive course of antibacterial therapy before various medical or dental interventions. This is due to the fact that these procedures significantly increase the likelihood of bacterial infection in children with congenital heart disease. When raising a child, it is necessary to take into account and promptly explain to the child what operation they underwent, what pathology they have, how to behave with others and what drugs must be taken constantly. Thus, parents should instill in the child responsibility for themselves and their health. This approach will also allow for a smoother transition from pediatric cardiologist to adulthood as the child grows older. When interacting with health authorities and concluding a health insurance policy, everything must be taken into account to cover the full range of medical services required for congenital heart disease, including: • Diagnosis • Various procedures or surgeries • Intended medications • Possible further treatment options and prevention of complications • Insurance against possible diseases Insurance of a child with a congenital defect is one of the possible options for protecting a child from adulthood problems. If your employer offers you insurance, be sure to check with the insurance program and whether the insurance will cover your child’s services in the future. Food. It should be borne in mind that some newborns and children with congenital heart disease lag behind in development and growth compared to other children of the same age. Because the heart of a child with UTI has to work much harder, the child is shown enough calories and regular nutrition. In addition, such a child gets tired quickly and refuses to eat. As a result, the child may grow up thin and underdeveloped compared to other children. He usually starts to roll over from his back to his stomach, sit or walk later than usual. More often it is more about physical development. After surgical correction and treatment, growth and development usually return to normal. To help your child with nutrition, it is necessary to consult a pediatrician or cardiologist about the optimal diet. Exercise and physical activity. Performing special exercises designed for children with congenital heart disease will improve their physical development and health. It is recommended to discuss the optimal program of such training with a pediatric cardiologist, as certain exercises used are shown at a certain stage of development, and some of them are completely contraindicated. When a child enters a kindergarten or school, it is important to report your child’s illness to a health care provider (nurse or therapist) attached to that educational institution. This will allow him to receive timely medical care if necessary. Emotional problems. Emotional problems often occur in children and adolescents with serious illnesses, because due to frequent hospitalizations, school absences due to illness, children feel isolated from others and experience it emotionally. Many are unable to feel like a "normal" child due to the peculiarities of their development and forced limitations. It also happens that siblings are jealous of their parents about a child who needs a lot of attention because of health problems. Therefore, be sure to discuss the emotional characteristics of your child with a doctor or even better with a psychotherapist, which will allow you to better adapt the child to adulthood. Adults with congenital heart disease. As for adult patients, some of them "disappear" from the field of view of the cardiologist and believe that they do not need further observation. However, this is not entirely true, as they need to consider the possibility of different problems in the future. History of the disease. Sometimes some patients mistakenly believe that after surgery they become completely healthy and their congenital pathology is completely cured. However, this is wrong, and such patients are obliged for their own benefit to be under the supervision of a cardiologist, which will allow them to maintain good health and identify possible invisible complications. Knowing the history of the disease and the effects of drugs used in treatment will allow you to compensate for changes in the condition before consulting a cardiologist, if necessary. Prevention of bacterial endocarditis. As mentioned earlier, patients with UTI due to the high risk of infection during medical and dental manipulations are shown to conduct antibacterial prophylaxis. This is due to the fact that these procedures increase the likelihood of bacteria entering the systemic bloodstream and the development of infection on the heart valve. Regular brushing of teeth, flossing and visiting the dentist can prevent the development of bacterial endocarditis. Contraception and pregnancy. Women who have or have had surgery for congenital heart disease should discuss birth control and various contraceptive methods with their doctor. In most cases, you can use any of the methods of contraception, but some are contraindicated in the use of, for example, birth control pills or intrauterine devices (IUDs). In patients with simple congenital heart disease, pregnancy and childbirth can go completely smoothly. However, before planning a pregnancy, it is important to consult a doctor about the course of pregnancy and compliance with certain recommendations, as pregnancy can cause decompensation of circulatory disorders. In addition, for patients with congenital malformations, it is important to consult a geneticist when planning a pregnancy. This is due to the fact that patients with UTI have a high risk of birth with the same defect in the development of the cardiovascular system as parents.
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